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RDCRN Contact Registry
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#	Item
11	Consent Form for the RDCRN Contact Registry Please read and make sure you understand the information below before signing this form. In this form the term “you” refers to you or your child. What is the RDCRN Contact Add to Reading List Source URL: www.rarediseasesnetwork.org Language: English - Date: 2014-02-26 12:01:26 RDCRN Contact Registry Protected health information University of South Florida Health Insurance Portability and Accountability Act Internet Severe combined immunodeficiency Medical privacy Health Rare diseases National Institutes of Health
12	Consent Form for the RDCRN Contact Registry Please read and make sure you understand the information below before signing this form. In this form the term “you” refers to you or your child. What is the RDCRN Contact Add to Reading List Source URL: www.rarediseasesnetwork.org Language: English - Date: 2014-02-26 12:04:06 Biology Medicine National Institutes of Health RDCRN Contact Registry Mitochondrion Chronic progressive external ophthalmoplegia MELAS syndrome Mitochondrial neurogastrointestinal encephalopathy syndrome University of South Florida Health Mitochondrial diseases Rare diseases
13	Consent Form for the RDCRN Contact Registry Please read and make sure you understand the information below before signing this form. In this form the term “you” refers to you or your child. What is the RDCRN Contact Add to Reading List Source URL: www.rarediseasesnetwork.org Language: English - Date: 2014-02-26 11:58:59 Hillsborough County Florida RDCRN Contact Registry Florida Protected health information University of South Florida Health Insurance Portability and Accountability Act Internet Medical privacy Patient advocacy Health National Institutes of Health Rare diseases
14	PDF Document Add to Reading List Source URL: www.grdo.ie Language: English - Date: 2012-06-18 06:50:36 Medical terms Rare Disease Day Rare diseases European Organization for Rare Diseases Medical diagnosis Disease Genetic Alliance UK RDCRN Contact Registry Health Medicine Epidemiology
15	Rare Diseases Clinical Research Consortia (RDCRC) for RDCRN: Pre-Application meeting Preparing to submit a U54 Application for RDCRC (RFA-TR[removed]Wednesday, September 25th, 2013 Add to Reading List Source URL: rarediseases.info.nih.gov Language: English - Date: 2013-09-27 15:14:27 Nursing research Epidemiology Research Rare diseases Rare Diseases Clinical Research Network National Institute of Diabetes and Digestive and Kidney Diseases Clinical trial National Heart Lung and Blood Institute RDCRN Contact Registry National Institutes of Health Health Medicine
16	National Rare Disease Registries: Overview from Spain THEME 2 Knowledge Generation & Dissemination A collaborative model to progress knowledge and Add to Reading List Source URL: www.rare-diseases.eu Language: English - Date: 2014-05-20 05:03:22 Medical terms Medical informatics Epidemiology Disease registry EuroBioBank International Classification of Diseases for Oncology Chronic Cystic fibrosis RDCRN Contact Registry Health Medicine Rare diseases

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